Charlotte CFS/ME/FM Support Group Newsletter

for July 16, 2012

 

Hi Everyone,   Remember:

During the Summer We Meet for Daytime Luncheons as follows:

July 19th, Thursday, at 1:30PM - Panera Bread - 7510 Pineville Matthews Road, Charlotte, NC 28226; Phone: 704-540-0309, near Dr. Lapp's office. It is across the street (Rt. 51) from the Carmel Commons shopping center where the Fresh Market is.  It is also very close to Dr. Lapp's office.

If you are coming from Matthews on Hwy 51 - you pass the intersection where Dr. Lapp's office is and keep going - Panera Bread is at the end of that little strip shopping center.   Just past it on the right, you turn for parking after you pass Panera bread on the right. Be sure to look for the blue and purple balloons to find other members of the group.

 

August 16th, Thursday, at 1:30PM - Panera Bread - 1904 Matthews Township Parkway, Matthews, NC 28105; Phone:  704-846-4003.  This is located in parking area of the strip mall where Target is across from another mall (forget the name).  This is not too far from and near the hospital as well as the intersection of Independence (Rt. 74) and Matthews Township Parkway (Rt 51).

I will be out of town on vacation in NY visiting family from August 2nd thru August 16th so there will be no luncheon reminder from me the week of the August luncheon except for general newsletter I'll send shortly before we leave for New York.

 

Note:  Our September 20th meeting will feature our very own Dr. Charles Lapp. 

**********************************************************************************

ME/CFS HealthWatch July 2012

Drivers of Mitochondrial Dysfunction in ME/CFS & Subtypes Identified

A trio of UK-based researchers - Drs. Norman E Booth, Sarah Myhill, and John McLaren-Howard - published a breakthrough study in 2009 titled "Chronic Fatigue Syndrome and Mitochondrial Function."

Now they've released the result of their continuing study of 138 ME/CFS patients, all with mitochondrial dysfunction. They identify two major immediate causes of the dysfunction and different levels of severity, as well as subtypes "differentiated by how cellular metabolism attempts to compensate for the dysfunction." A third paper discussing treatment implications "is in preparation."

To read on:

http://www.prohealth.com/ME-CFS/library/showArticle.cfm?libid=17076&B1=EM070412C&utm_source=EM070412C&utm_medium=em&utm_campaign=MECFS&slvor=10880.1067621.0.1.0.86766&eid=nmhenson@aol.com

To read this entire newsletter from July 1:

http://www.prohealth.com/em/EM070412C/index.cfm?slvor=10880.1067610.0.1.0.86766&eid=nmhenson@aol.com

 

 

From Phoenix Rising via Co-Cure:  Subject: MED, RES: Major Move From FDA Puts Ampligen Back on Track

Date:    Wed, 11 Jul 2012 20:46:14 -0500
From:    Cort Johnson phoenixcfs@GMAIL.COM


Breathing life back into Ampligen the FDA reversed a  2009 decision some
commentators felt was  potentially crippling to Hemispherx BioPharma,
Ampligen’s producer when they stated they would not, after all, require a
expensive  300 person study to assess Ampligen’s effectiveness in chronic
fatigue syndrome (ME/CFS). (Safety concerns appear to have been taken care
of.)  Instead they would allow Hemispherx to use new analyses of data it’s
already collected.  Hemispherx must be breathing a huge sigh of relief.

Check out this major news for the ME/CFS community in
in "Major Move From the FDA Puts Ampligen Back on Track."

http://phoenixrising.me/archives/12328

 

ProHealth News July 6, 2012

The Weight is Over - Green Means Go

By Karen Lee Richards*

Year after year weight loss tops the list of New Year's resolutions - and with good reason. The Centers for Disease Control and Prevention estimate that two out of every three U.S. adults are overweight or obese. If you're one of the millions of people struggling to lose weight, it may be time to add a little green tea to your diet.

There is a strong body of scientific evidence supporting the beneficial effects green tea can have on body weight, waist circumference and abdominal fat.

 To read on:


http://www.prohealth.com/ep/EP070612/index.cfm?slvor=10889.1068074.0.1.0.86766&eid=nmhenson@aol.com

  

FDA Announces New Strategy for Long-Acting Opioids

 

By Karen Lee Richards, Health Guide Thursday, July 12, 2012

Three years ago, because of increasing misuse and abuse of opioid medications––particularly extended-release (ER) and long-acting (LA) opioids like OxyContin––the FDA began working on the development of what they call a risk evaluation and mitigation strategy (REMS). Earlier this week, the FDA announced that they had approved a REMS that applies to ER and LA opioids.  To read on:

http://www.healthcentral.com/chronic-pain/c/5949/154459/fda-announces?ic=6042

 

Subject: Need your and friends' signature on this MCS/ES Petition

Date:    Sat, 7 Jul 2012 20:05:35 -0400
From:    "And Vote:" <uncmom59@AOL.COM>

Mary Lamielle with the National Center for Environmental Health Strategies (NCEHS) invites you to sign on in support of recommendations (see below) to the National Council on Disability (NCD) to address the needs of those disabled by chemical and electrical sensitivities. Please act immediately. Mary intends to present the recommendations with signatures to the National Council on Disability Chairperson Jonathan Young at a Board meeting in Washington, DC later this month.
To sign on, please send your name, city/state and e-mail address to marylamielle@ncehs.org  Subject: Sign on NCD Recommendations.
 
The recommendations:
1. The NCD should play an active role in organizing and participating in an Interagency Committee on Chemical Sensitivities;
2. The NCD should examine the significant levels of harassment and discrimination experienced by those with chemical and electrical sensitivities in housing, employment, education, healthcare, medical services, and daily life;
3. The NCD should support federal research on chemical and electrical sensitivities;
4. The NCD should adopt the CDC Fragrance-Free Policy;
5. The NCD should adopt a fragrance-free and healthy, accessible meeting policy similar to that of the Access Board; the NCD should also adopt a policy to limit exposure to electrical devices and frequencies at NCD meetings; and
6. The NCD should support the addition of a Board member with expertise on chemical and electrical sensitivities.

********************************************************************************

Our Support Group Leader and Board Members:

- Our Support Group Leader is Kebbie Cannon at  kebbie1@windstream.net or Asst. Support Group Leader, Maggie Reed at Maggie_Reed@comporium.net

- Medical Advisor Dr. Charles Lapp, Hunter Hopkins Clinic in Charlotte.  You can visit Dr. Lapp's Web Sites at www.drlapp.com where there is ample info about his clinic and making an appointment if you need.  His other site, which is primarily director toward helping your doctors treat these disorders, is  http://www.cfstreatment.info/

- Our Treasurer is Leslie Vann at llvann@usa.net

 - Newsletter Editor is Nancy Henson at nmhenson@aol.com

- Visit our web site at www.CharlotteCFS.org

 

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