Charlotte CFS/ME/FM Support Group Newsletter

for March 15, 2008

The Greater Charlotte Area CFS/ME/FMS Support Group  - The next meeting is Thursday, March 20th, with Jeffery Ewert, Ph.D, PsychoNeurologist, speaking on Managing Cognition - He will offer insight to the testing available that can measure loss of cognitive function, for those who need that information for disability hearings. And he also can offer help in learning to cope with these losses in cognition. As always we meet at the Sharon Presbyterian Church, 7:00 - 9:00PM, in the Parlor of the Activity Building behind the sanctuary.
 
There will be refreshments thanks to Lauren and Dr. Lapp and an information table with brochures and a huge supply of materials regarding both CFS/ME and Fibromyalgia. For details, contact Kebbie at kebbie1@alltell.net or 704-843-1193.
 
Charlotte CFS/ME/FM Support Group 2008 Meeting Schedule
Apr 17   -   Common Symptoms and Overlap Disorders    Dr. Lapp / Bruce Campbell PhD
May 15  -   Picnic -  5 PM Open house and picnic at the Cannon's Strawberry Acres farm, Waxhaw  
Jun 19   -   Caregivers   
Jul 17    -   Lunch social  1 PM, Earthfare at Johnston Road and I-485
Aug 21  -   Lunch social 1 PM, Souper Salad, 10046 Independence @ Sam Newell Rd., Matthews              
Sept 18 -   Campbell Series - The CFIDS/Fibromyalgia Self-Help Book

Note - The Campbell Series runs through November with December being our annual Christmas party then resuming the Campbell Series for the first several months in 2009.

 
 
HopeKeepers of Charlotte - A weekly faith-based support group for chronic, invisible illness. Pineville Church of the Nazarene, 8614 Pineville-Matthews Rd., Charlotte, NC 28226, Tuesdays, at 7:00 - 8:30 PM., Room 420 of the Family Life Center. To enter the parking for the FLC, take the side street and you can park either on the side or behind the FLC. For more information you can contact Renae Savage at either hopekeepers@carolina.rr.com or 704-341-0959.
 
 
Gastonia FM/CFS Support Group Meeting - The 3rd Thursday of the month, NO MEETING IN MARCH. The next meeting will be Thursday, April 17th, from 1:00 - 2:30 p.m. and meeting in the lunch room at Bethlehem Baptist Church, off New Hope Rd. and 85, behind CarMax and Bojangles at 1PM until 2:30 PM. .  Everyone is to bring a bag lunch and magazines for a magazine swap.  For more information, contact Victoria Bonner at  vbonner2@lycos.com . 
 
New Fibromyalgia Support Group in Huntersville
This women's group meets the first Monday of each month at 1PM.  The meetings are held at "Inches-A-Weigh", 15905 Brookway Drive, Suite 4104, Huntersville. These meetings are organized the center's manager, Lisa Morgan. Seating is limited so please call and make a reservation at 704-987-8840.  Please note:  This is a women only group.
 
 
Arthritis Services
This group offers a Fibromyalgia support group with monthly meetings the third Wednesday of each month. The meetings are held at Arthritis Services, 500 E. Morehead Street, Suite 320 at 1PM.  If you need more information, you can contact Arthritis Services at 704-331-4878.
 
 
ATTENTION:    Since Dr. Lapp is now disseminating newsletters, please send any and all email address changes directly to him at CWLapp@cs.com .   Thanks!
 
 
Volunteers Needed - Particularly for Greeters
Carolyn Young is now coordinating this effort and we already have one volunteer - Steve Rogers - Yay Steve. Thanks a lot. And rumor has it that more are interested so.....
Can you help - we need volunteer greeters!!!!
 
 
Donations for Materials
Please be aware that many of the materials on the information table are provided by our support group and from your donations. For example, the Canadian Clinical Case Doc costs about $1.32 per document. Please take note of the donation box located by the entrance/exit. "Anything" you can help with will be greatly appreciated.
 
 
 ACTION Alert - Go to the following link to express your views on the undertreatment of chronic pain and urging your government rep. to sign:  NPCPA (HR 2994) - A separate email has already been circulated for this purpose. This is just a reminder if you have not already taken action. https://secure2.convio.net/apf/site/Advocacy?pagename=homepage&page=UserAction&id=217
 
 
 
Prohealth Newsletter - This issue has excellent articles - be sure to review this newsletter - there may be important news for you: http://prohealth.com/eg/EG031208/index.cfm
 
 
 
Frances D'Amato (who demonstrated Tai Chi at a recent meeting) will be doing Tai Chi demonstrations at Arthritis Services on 3/19 @ 1PM and 4/16 at 12 noon at main Library. She is also in the process of producing a meditation CD that will be offered for sale 3/19.
 
 
The March CFIDSLink E-Newsletter by the CFIDS Assoc. of America
http://www.cfids.org/archives/2006-2010-cfidslink/march-2008.asp?tr=y&auid=3440402
 
 
Another Reason to Get Rid of the "F" Word - Its much more than being tired and another reason to adopt the Canadian Clinical Case Definition!!!
http://www.washingtonpost.com/wp-dyn/content/story/2008/03/03/ST2008030301148.html?sid=ST2008030301148
 
 
Fabry - An ME-like Disorder
http://www.fabrycommunity.com/patient/about/fc_p_pt_fabry-signs.asp
 
 
And then there's Antiphospholipid Syndrome
http://www.mayoclinic.com/health/antiphospholipid-syndrome/DS00921/UPDATEAPP=0
 
 
Latest FM E-newsletter from ImmuneSupport.com:
http://www.immunesupport.com/em/EM030508F/index.cfm
 
 
Invest in ME - The above articles came from Invest In ME.
This organization supports biomedical research and education about ME in the UK. But they offer a free e-newsletter which is where I get these articles.
http://www.investinme.org/index.html
 

National Fibromyalgia Associations First Fibromyalgia Legislation Day Garners Support for Resolution Calling for Task Force to Establish Programs to Raise Awareness - http://www.fmaware.org/site/News2?page=NewsArticle&id=6985

 
Sleep Awareness Week
http://www.fmaware.org/site/News2?page=NewsArticle&id=6959
 
 
ProHealth's Latest Newsletter Includes an Article on B-12 Benefits
http://prohealth.com/library/showarticle.cfm?id=2899&T=HEALTH&B1=EG031208
 

Mary M. Schweitzer, Ph.D. Presentation to the CFSAC (Chronic Fatigue Syndrome Advisory Committee) U.S. Department of Health and Human Services; Washington, DC - May 17, 2007; http://www.cfids-me.org/cfscc/cfsacs07.html

 
 
Dr. Teitelbaum's Latest Newsletter - Viral Treatment
http://www.endfatigue-dev.com/web-newsletters/nl_17_cfs_fm_3-7-2008.html
 

B12 Shots May Fight Infections - This is from the above document - very interesting - I have been self injecting B12 for years now. I'd love to see a study done on this theory. http://www.endfatigue-dev.com/health_articles_f-n/Infections-b12_shots_may_kill_infections.html

 
Dr. Byron Hyde's Booklet on ME
http://www.investinme.org/Documents/PDFdocuments/Byron%20Hyde%20Definition%20Booklet.pdf
 
 
ME and Stomach Virus Link (note the mention of inflammation)
http://www.medicalnewstoday.com/articles/82329.php
 
 
CFIDSLink - Latest Issue from the CFIDS Association of America
http://www.cfids.org/archives/2006-2010-cfidslink/march-2008.asp?tr=y&auid=3440402
 
 
 
Laughter and Warm Fuzzies
We all need to laugh - its good for us. And we need warm fuzzies. So I'm going to add a goodie in that department with each newsletter.  Here's one someone sent to me recently and I absolutely adore it.
If the picture doesn't show up for you, I've attached it.
 


http://www.msplinks.com/MDFodHRwOi8vd3d3Lnhvb3NwYWNlLmNvbS8=
 

 
 
Spiritual Corner
 
"Our Potential" from Rest Ministries Devotionals - Scroll down past the March 6th devotional.
http://chronicillnesssupport.typepad.com/dailydevotionals/2008/03/index.html
 
Psalm 62:5: Find rest, O my soul, in God alone; my hope comes from him.




 


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