Hi Everyone,
Here I am again sharing information with you about ME/CFS (myalgic
encephalomyelitis and chronic fatigue syndrome) and Fibromyalgia on behalf
of the Charlotte Area ME/CFS/FM Support Group. I'll be
merging advocacy information with this newsletter as well. I expect I'll
generate a newsletter about twice a month. One will be timed to be a meeting
reminder for the next support group meeting.
DISCLAIMER: My apologies to anyone who has asked to be
removed from any e-newsletters....but you have received one. Please just
email me and request that you be removed. We are in transition so there may
be some oversights so please excuse them. And anytime you reach the point
where you no longer wish to be on distribution, please do not hesitate to
send me a quick email just requesting that you be removed. No problem!!
Our next support group meeting will be Thursday, September 18th, at the
Sharon Presbyterian Church. I'll be sending out a reminder with more details
about the topic. The schedule is being revamped but we'll have this
information for you soon.
Note: Because of scheduling conflicts, the
start of the Bruce Campbell CFS/FM Self Help Study Course will not begin in
September but be postponed until January of 2009. We'll keep you apprised of
that as the time approaches.
Nancy Henson
National Chronic Invisible Illness Awareness Week
September 8 - 15, 2008
============== List of Topics Covered in This
Newsletter ================
- Treating M.E. 'The Basics" Section of The
Hummingbird's Guide Updated and Extended
- Research - Fibromyalgia Skin Sensitivities
- Dr. Teitelbaum's Latest E-Newsletter (CFS & FM)
- Downloadable files from Fibromyalgia Network
- Adrienne, About.com CFS/FM Forum Guide
E-Newsletter/Articles
- August 2008 Fibromyalgia Network E-News
=============================================================
Jodi Bassett - A Hummingbird's Guide -
(
www.ahummingbirdsguide.com)
recently distributed her
most recent e-newsletter from the Hummingbird Guide newsletter. I will
tell you that it is quite lengthy. If you have not been to this web site
before, you may find it overwhelming as she does includes an enormous
amount of information:
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'Treating M.E. - The Basics' has been fully
updated and extended!
This paper was updated in July and now includes a new 'top 10 treatments'
section, a short section on cancer and M.E. and how to reduce your risk,
information about how to avoid EMF radiation, a lot more information on diet
and the importance of whole foods and balancing protein, carbs and fat, more
information on treatments to avoid (that can cause serious
relapses/deterioration), information on tests you can have done privately
that can help with determining the best treatments, ways to save money on
supplements without sacrificing quality, and lots more.
I received so much useful feedback after the July update however, that I
decided to act on some of it right away and so the paper was also updated
again, and further extended, in August.
The section on diet was extended, and new sections were added about weight
loss and M.E., how to shop and prepare food more easily when you are ill,
which protein shakes are safest, and how to make meals that are liquid or
easier to swallow.
A big thank you to everyone who offered suggestions and positive feedback.
See:
http://www.ahummingbirdsguide.com/treatingmethebasics.htm
The following link is referred to in the last paragraph pertaining to Dr.
Cheney. However, the first link doesn't not work but all references to Dr.
Cheney are all very worth reading if you are not familiar with his work.
The following link is regarding Th1 and Th2 - Cancer and M.E.:
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Research on Fibromyalgia Skin Sensitivities
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From Dr. Teitelbaum's Latest Newsletter
Treating Brain Fog in CFS/FMS
Dear Readers,
Brain fog is very common
in CFS/FMS, and presents as:
1. Horrible short term
memory,
2. Difficulty with
word finding and word substitution (e.g., substituting the word "fork" for
"knife," or your neighbor's name for your husband's name—not
a Freudian slip in CFS), and
3. Approximately 30%
of those with CFS/FMS have episodic disorientation lasting ~ 30-60 seconds.
This often occurs when driving or even turning down a supermarket aisle. It
can feel scary, but is not dangerous. Though you may not know where you are
(or are going) people seem able to drive or walk safely till it passes. This
can also manifest as briefly not recognizing common objects or names (even
of children).
Brain fog can
sometimes be the scariest part of the illness for some—especially
professionals that had been functioning at a very high level. Though
standard testing will often not pick up the problem (nor is it designed to),
in some cases the brain fog makes it hard or even impossible to continue
one's job. In other cases, brain fog can be mild.
The good news is that
brain fog tends to resolve with treatment along with the pain and fatigue.
In this week's feature article, we will discuss the key treatments that can
help you to get your brain back!
Read more » http://www.endfatigue.com/health_articles_c/CFS_FM-treating_brain_fog.html
To read more articles in Dr. Teitelbaum's newsletter, click below:
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Downloadable PDF Files of Fibromyalgia Information
from Fibromyalgia Network
The topics include:
- sleep
- pain
- facts behind the reality of FM
- coping
- membership, educational, and awareness information
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For Those of You Who Do Not Subscribe to
Adrienne's E-Newsletter (About.com CFS/FMS Forum guide):
Things to Avoid When You Have Fibromyalgia or Chronic Fatigue
Syndrome
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Fibromyalgia Network August 2008 E-News